Recent Advances in
Primary
Immunodysregulation
Disorders
MENAT-IEI-RCR Registry
Middle East, North Africa and Türkiye Inborn Errors of Immunity Research Consortium Registry
Advancing collaboration, discovery, and patient outcomes through a regional registry for inborn errors of immunity.
About the Registry
The MENAT-IEI-RCR Registry is a collaborative regional initiative designed to collect standardized deidentified clinical, genetic, laboratory, treatment, and outcome data from individuals living with inborn errors of immunity (IEI) across the Middle East, North Africa, and Türkiye.
VISION
To create the leading regional resource for advancing research, improving diagnosis, supporting precision medicine, and strengthening international collaboration in IEI.
Registry Goals
Understand Disease Burden
Define epidemiology and clinical characteristics across the region.
Accelerate Research
Support multicenter studies and translational research initiatives.
Improve Patient Care
Benchmark outcomes and promote evidence-based practice.
Enable Collaboration
Connect clinicians, scientists, and institutions across MENAT countries.
What Data Are Collected?
- Clinical Information: Diagnosis, manifestations, treatments, and outcomes.
- Genetic Data: Molecular diagnoses and genotype-phenotype correlations.
- Research Metrics: Longitudinal data supporting clinical and translational studies.
- All data is deidentified at the point of data entry into the registry.
Who Can Participate?
Healthcare institutions, clinicians, researchers, and collaborating centers involved in the diagnosis, treatment, or study of patients with IEI.
Why It Matters
The registry aims to improve understanding of regional disease patterns, facilitate earlier diagnosis, support clinical trials and observational studies, foster precision medicine approaches, and ultimately improve outcomes for patients and families affected by IEI.
JOIN THE CONSORTIUM
We welcome regional and international collaborators interested in advancing IEI research and patient care.